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Providing Comprehensive diagnostic, treatment,
prevention, research, and cost effective pharmacy services
for a longer, healthier life

About Hemophilia Treatment Centers:
Hemophilia is a rare, chronic disease that can have many physical complications as well as significant emotional, social and financial consequences. Federally supported Hemophilia Treatment Centers (HTC) in Region IX belong to a nationwide network of over 140 Centers that use multidisciplinary teams of blood disorder specialists to provide expert comprehensive diagnosis, medical care, outreach, education, outcomes monitoring, surveillance, and prevention services to people with hemophilia, Von Willebrand Disease, and related conditions.

HTC care results in longer, healthier lives, with lower medical costs. HTC care is associated with 40% reductions in mortality and bleed related hospitalizations, as well as increased medically supervised home infusion, fewer days lost from work and school, increased employment, and reduced overall cost of care. The fourteen HTCs in Region IX serve over 5600 residents of California, Hawaii, Nevada and Guam.

HTCs promote comprehensive care and prevent blood disorder complications to achieve goals set by the Federal Centers for Disease Control and Prevention and the Maternal and Child Health Bureau. Services are provided in line with National Hemophilia Foundation recommendations.

Comprehensive HTC care has preventive, diagnostic and rehabilitative components. To promote a normal life and life span, HTC care should begin at birth and last a lifetime. A family centered, multidisciplinary team approach is essential.

HTC teams include hematologists, nurses, social workers, physical therapists, and orthopedists. For HIV and hepatitis, other specialists are consulted, including infectious disease, immunology, gastroenterology, psychology, nutrition, and health education. HTCs also coordinate care with dentists, genetic counselors, obstetrician/gynecologists, and primary care practitioners and they educate school personnel.

HTC care in the U.S. is organized into regions. Regional leadership provide fiscal and administrative oversight, grants management, capacity building, clinical education, technical assistance, evaluation, and liaison with related public and private health agencies at the local, state, and federal levels.

This page was last updated on 12/03/2007